Other Names for this Disease
- BHD syndrome
- Birt Hogg Dube syndrome
- Fibrofolliculomas with trichodiscomas and acrochordons
- Hornstein-Knickenberg syndrome
- BHD Foundation provides information on previous and upcoming conferences related to this condition.
The Spectrum of Caregiving and Palliative Care in Rare Diseases, Winter 2014
Location: NIH Natcher Conference Center, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
Second International Birt-Hogg-Dube Symposium, Thursday, April 22, 2010
Location: Washington Marriott at Metro Center, Washington, DC
Description: Goals of the symposium included working together to (1) gather information/data to support new clinical trials with drug/gene therapies based upon in vitro and in vivo research results; (2) generate important reagents, including antibodies, animal models, cell lines, tumor samples, recombinant proteins, etc., for distribution to the Birt-Hogg-Dube (BHD) research community; and (3) develop fruitful collaborations among the researchers and clinicians in attendance.
VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.