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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Junctional epidermolysis bullosa, non-Herlitz type


Other Names for this Disease

  • Epidermolysis bullosa junctionalis, disentis type
  • Epidermolysis bullosa junctionalis, non-Herlitz type
  • Epidermolysis bullosa junctionalis, progressive
  • Epidermolysis bullosa junctionalis, severe nonlethal
  • Epidermolysis bullosa, generalized atrophic benign
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareConnect is an online social network for patients and families to connect with one another and share their experience living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders). Click on the link above to view the community for Epidermolysis bullosa.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Epidermolysis bullosa junctionalis, disentis type
  • Epidermolysis bullosa junctionalis, non-Herlitz type
  • Epidermolysis bullosa junctionalis, progressive
  • Epidermolysis bullosa junctionalis, severe nonlethal
  • Epidermolysis bullosa, generalized atrophic benign
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.