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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Subcortical band heterotopia


Other Names for this Disease
  • DC
  • Double cortex
  • Double cortex syndrome
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Organizations


Organizations Supporting this Disease

  • American Epilepsy Society
    342 North Main Street
    West Hartford, CT 06117-2507
    Telephone: 860-586-7505
    Fax: 860-586-7550
    E-mail: info@aesnet.org
    Website: http://www.aesnet.org

  • Epilepsy Foundation
    8301 Professional Place
    East Landover, MD 20785-2238
    Toll-free: 800-EFA-1000 (800-332-1000)
    Telephone: 301-459-3700
    Fax: 301-577-4941
    E-mail: info@efa.org
    Website: http://www.epilepsyfoundation.org/

  • PVNH Support & Awareness
    E-mail: info@pvnhsupport.com
    Website: http://pvnhsupport.com/

  • The Lissencephaly Network, Inc (Canada)
    1549 Regent Street
    Regina Saskatchewan S4N 1S1
    Canada
    Telephone: 306-569-0146
    Fax: 306-522-1153

  • The Lissencephaly Network, Inc (USA)
    10408 Bitterroot Court
    Fort Wayne, IN 46804
    Fax: 260-432-4310
    E-mail: lissnet@lissencephaly.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support