Other Names for this Disease
- Juvenile onset macular degeneration
- Stargardt macular dystrophy
The U.S. National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. Currently, a number of clinical trials are identified as completed, active, or enrolling individuals with Stargardt disease and other types of macular degeneration. To find trials specific to Stargardt disease, click on the link above and use "Stargardt disease" as your search term, or click here. To find trials regarding all types of macular degeneration, use "macular degeneration" as your search term, or click here. After you click on a study, review its "eligibility" criteria to determine its appropriateness. Use the study’s contact information to learn more. Check this site often for regular updates.
Individuals interested in clinical trials can also contact the Patient Recruitment and Public Liaison (PRPL) Office at the National Institutes of Health (NIH). We recommend calling the toll-free number listed below to speak with a specialist, who can help you determine if you are eligible for any clinical trials. If you are located outside the United States, and would like to be contacted via telephone, you will need to provide your telephone number in full, including area code and international dialing prefix.
Patient Recruitment and Public Liaison Office
NIH Clinical Center
Bethesda, Maryland 20892-2655
Web site: http://clinicalcenter.nih.gov/
If you are interested in enrolling in a clinical trial, you can find helpful general information on clinical trials at the following ClinicalTrials.gov Web page.
- Stargardt's disease. American Macular Degeneration Foundation. 2011; http://www.macular.org/stargardts.html. Accessed 2/25/2011.
Clinical Trials & Research for this Disease
- ClinicalTrials.gov lists trials that are studying or have studied Stargardt disease. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- The Research Portfolio Online Reporting Tool (RePORT) provides access to reports, data, and analyses of research activities at the National Institutes of Health (NIH), including information on NIH expenditures and the results of NIH-supported research. Although these projects may not conduct studies on humans, you may want to contact the investigators to learn more. To search for studies, click on the link and enter the disease name in the "Terms Search" box. Then click "Submit Query".