Congenital generalized lipodystrophy type 4
Other Names for this Disease
- Berardinelli-Seip congenital lipodystrophy, type 4, with muscular dystrophy
- Generalized congenital lipodystrophy with myopathy
- Lipodystrophy, Berardinelli-Seip congenital, type 4, with muscular dystrophy
The Spectrum of Caregiving and Palliative Care in Rare Diseases, Winter 2014
Location: NIH Natcher Conference Center, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.