Other Names for this Disease
- Lymphoplasmocytic sclerosing pancreatitis
The Spectrum of Caregiving and Palliative Care in Rare Diseases, August 2014
Location: NIH Natcher Conference Center, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
NIDDK Workshop on Total Pancreatectomy with Islet Auto-Transplantation (TP-IAT): Gaps, Needs, and Opportunities, Wednesday, July 23, 2014
Location: University of Pittsburgh, Pittsburgh, PA
Description: <span style="font-size: 11pt; font-family: Times New Roman;">The results and conclusions from this workshop will be published as a conference summary for widest possible dissemination to the fields involved, and will be used to inform the development of new research initiatives by DEM and DDN/NIDDK. </span>
Autoinflammation 2013: The Seventh International Congress of FMF and Autoinflammatory Diseases, Wednesday, May 22, 2013 - Sunday, May 26, 2013
Location: Lausanne, Switzerland
Description: The goals of this meeting include the exchange of clinical and scientific information regarding the autoinflammatory diseases. This is likely to result in improvements in the diagnosis and treatment of these diseases. Past Congresses have resulted in new scientific collaborations, development of registries for patients with specific autoinflammatory disorders, and the initiation of multicenter clinical trials.
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.