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Organizations Supporting this Disease
Social Networking Websites
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- The Ocular Melanoma Foundation Patient Forum is an interactive social network for patients, family members and health care providers to interact with one another. Click on the link to read more about this forum.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.