The Spectrum of Caregiving and Palliative Care in Rare Diseases, August 2014
Location: NIH Natcher Conference Center, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
18th Annual Meeting of the PanAmerican Society of Pigment Cell Research, Sunday, September 08, 2013 - Wednesday, September 11, 2013
Location: Fluno Center, University of Wisconsin, Madison, WI
Description: The meeting is expected to enhance and benefit, by bringing together a relatively small group of scientists, the knowledge, collegiality, collaboration, and synergy within the pigment cell research community. More importantly, the meeting serves to encourage and support young investigators in their careers.
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.