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Genetic and Rare Diseases Information Center (GARD)

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Camurati-Engelmann disease

Other Names for this Disease
  • CED
  • Diaphyseal dysplasia 1, progressive
  • DPD1
  • Engelmann disease
  • PDD
More Names
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Your Questions Answered

2 question(s) from the public on this disease have been answered. Submit a new question.
  • I have had Camurati Engelmann disease since I was 5 years-old. I experience severe pain, headaches, and vision loss. Surgery has been recommended to treat the bone thickening in my skull. Will the skull bones grow back together following surgery? How can I learn more about medications, surgical procedures, and other treatments that have been effective in treating people Camurati Englemann disease? Click here for answer

  • My mother-in-law was recently diagnosed with Camurati-Engelmann disease. Can you provide me with information about this condition? Click here for answer