Pediatric Brain Tumor Foundation of the United States
302 Ridgefield Court
Toll-free: 800-253-6530 Telephone: 828-665-6891 E-mail: firstname.lastname@example.org Website: http://www.pbtfus.org
The Children's Tumor Foundation
95 Pine Street, 16th floor
Toll-free: (800) 323-7938 Telephone: (212) 344-6633 E-mail: email@example.com Website: http://www.ctf.org/
Social Networking Websites
DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.