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Genetic and Rare Diseases Information Center (GARD)

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Glomus jugulare tumors

Other Names for this Disease
  • Glomus tumor
  • Paraganglioma - glomus jugulare
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Your Question

I had a glomus jugulare tumor.  It was removed, but it grew back in my neck several years later and now I can't swallow.  How many people in the United States get a glomus jugulare tumor - I know that it's really rare.

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

How rare is glomus jugulare tumor?

It is estimated that one in 1.3 million people is affected by a glomus jugulare tumor each year.[1] 

The National Cancer Institute reports that 214 individuals were diagnosed with some type of paraganglioma, a group of tumor types that includes glomus jugulare tumors, in the years 2005 to 2009.[2]
Last updated: 1/28/2013