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Genetic and Rare Diseases Information Center (GARD)

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Paragangliomas 4

Other Names for this Disease
  • Paraganglioma, familial malignant
  • Paragangliomas, hereditary extraadrenal
  • PGL4
  • Pheochromocytoma, extraadrenal and cervical paraganglioma
  • Pheochromocytoma, familial extraadrenal
More Names
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Management Guidelines

  • GeneReviews provides current, expert-authored, peer-reviewed, full-text articles describing the application of genetic testing to the diagnosis, management, and genetic counseling of patients with specific inherited conditions. Click on the link to view the article on this topic.

Clinical Trials & Research for this Disease

  • The Paraganglioma Program at the University of Pittsburgh Cancer Institute offers a complete and comprehensive diagnostic and treatment program for patients who have tumors known as paragangliomas of the head and neck. To learn more about the research going on through this program, click the above link.