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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Myofibrillar myopathy


Other Names for this Disease
  • Alpha Beta crystallinopathy (type)
  • Desmin related myopathy (former name)
  • Desmin storage myopathy (former name)
  • Desminopathy (type)
  • Filaminopathy (type)
More Names
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Your Questions Answered


1 question(s) from the public on this disease have been answered. Submit a new question.
  • My mother has recently been diagnosed with this disease. Her first symptoms became apparent about 2.5 years ago when she developed weakness in one foot. She currently has little movement in her legs, and her hands, arms, speech and breathing are affected. What is the prognosis and life expectancy for this condition and what can we expect from here? Click here for answer