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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Buschke Ollendorff syndrome


Other Names for this Disease
  • BOS
  • Dermatofibrosis lenticularis disseminata with osteopoikilosis
  • Dermatofibrosis, disseminated with osteopoikilosis
  • Dermatoosteopoikilosis
  • Osteopathia condensans disseminata
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Treatment


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How might Buschke Ollendorff syndrome be treated?

There is currently no cure for BOS. Surgical removal of lesions on or under the skin may be done for cosmetic purposes. In some patients, surgical treatment of deafness may be possible. Surgery might also be necessary for some of the signs or symptoms associated with BOS. Osteopoikilosis is typically asymptomatic, but about 15-20% of individuals experience pain and joint effusions (fluid build-up). Usually, no special restrictions in activity are required for individuals with BOS.[3150]
Last updated: 3/16/2011


Clinical Trials & Research for this Disease

  • The U.S. National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. There are currently trials regarding connective tissue disorders. To see these trials, click on the link above.