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Genetic and Rare Diseases Information Center (GARD)

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Your Question

I was diagnosed in 2011 with this. I have pain most all the time in my right lower side and had a CT scan 3 weeks ago. I also have a lump under my right arm that does not grow but am now experiencing pain under arm. What is the prognosis for those of us that have this? What should we expect in the future?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What is the long-term outlook for individuals with hidradenocarcinoma?

Hidradenocarcinomas are known to be rather aggressive and have a high potential for local recurrence, metastasis (spreading to other parts of the body, especially lymph nodes), and poor outcome. Unfortunately, the factors that contribute to the long-term outlook (prognosis) for individuals with hidradenocarcinomas are not currently well-defined.

Hidradenocarcinomas can grow locally for a highly variable amount of time - sometimes decades. However, at some point the tumor becomes aggressive, growing either in the same general region as the primary tumor or in distant parts of the body (primarily lymph nodes). The prognosis for survival with newly diagnosed, nodular hidradenocarcinoma is generally considered poor with the 5-year disease-free survival rate being less than 30%. The tumors recur locally in about 50% of cases despite aggressive surgical treatment. Metastasis has been reported in more than 60% of individuals within the first 2 years, commonly through regional lymph nodes. Early diagnosis is thought to be critical to quality of life and outcome.[1]
Last updated: 9/25/2013