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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Hemophilia


See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Canadian Hemophilia Society
    400-1255 University St
    Montreal, QC H3B 3B6
    Canada
    Toll-free: 800-668-2686
    Telephone: 514-848-0503
    Fax: 514 848-9661
    E-mail: chs@hemophilia.ca
    Website: http://www.hemophilia.ca

  • National Hemophilia Foundation
    116 West 32nd Street, 11th Floor
    New York, NY 10001
    Toll-free: 800-42-HANDI
    Telephone: 212-328-3700
    Fax: 212-328-3799
    E-mail: handi@hemophilia.org
    Website: http://www.hemophilia.org/

  • World Federation of Hemophilia
    1425 Rene Levesque Blvd. W.
    Suite 1010
    Montreal, Quebec H3G 1T7
    Canada
    Telephone: 514-875-7944
    Fax: 514-875-8916
    E-mail: wfh@wfh.org
    Website: http://www.wfh.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.