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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Hemoglobin sickle-beta thalassemia


Other Names for this Disease
  • Hb S beta-thalassemia
  • Sickle beta thalassemia
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Organizations


Organizations Supporting this Disease

  • American Sickle Cell Anemia Association
    DD Building at the Cleveland Clinic,
    Suite DD1-201
    10900 Carnegie Avenue
    Cleveland, OH 44106
    Telephone: 216-229-8600
    Fax: 216-229-4500
    Website: http://www.ascaa.org

  • Cooley's Anemia Foundation
    330 Seventh Avenue, Suite 200
    New York, NY 10001
    Telephone: 800-522-7222
    Fax: 212-279-5999
    E-mail: info@cooleyanemia.org
    Website: http://www.cooleysanemia.org

  • Sickle Cell Disease Association of America
    231 East Baltimore Street
    Suite 800
    Baltimore, MD 21202
    Toll-free: 800-421-8453
    Telephone: 410-528-1555
    Fax: 410-528-1495
    E-mail: scdaa@sicklecelldisease.org
    Website: http://www.sicklecelldisease.org/

  • The Sickle Cell Information Center
    PO Box 109
    Grady Memorial Hospital
    80 Jesse Hill Jr Drive SE
    Atlanta, GA 30303
    Telephone: 404-616-3572
    Fax: 404-616-5998
    E-mail: aplatt@emory.edu
    Website: http://www.scinfo.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support