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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Microhydranencephaly


Other Names for this Disease
  • Hydranencephaly and microcephaly
  • MHAC
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations


Organizations Supporting this Disease

  • Brain Foundation
    P O Box 579
    Crows Nest, NSW
    1585 Suite 21
    Regent House 37-43
    Alexander Street Crows Nest, NSW 2065
    Australia
    Telephone: 61 2 9437 5967
    Fax: 61 2 9437 5978
    E-mail: info@brainaustralia.org.au
    Website: http://www.brainaustralia.org.au/

  • Children's Brain Disease Foundation
    Parnassus Heights Medical Building, Suite 900
    San Francisco, CA 94117
    Telephone: 415-665-3003
    Fax: 415-665-3003
    E-mail: jrider6022@aol.com

  • Hydrocephalus Association
    870 Market Street
    Suite 705
    San Francisco, CA 94102
    Toll-free: 888-598-3789
    Telephone: 415-732-7040
    Fax: 415-732-7044
    E-mail: info@hydroassoc.org
    Website: http://www.hydroassoc.org

  • National Hydrocephalus Foundation
    12413 Centralia Road
    Lakewood, CA 90715-1653
    Toll-free: 888-857-3434
    Telephone: 562-924-6666
    E-mail: debbifields@nhfonline.org
    Website: http://nhfonline.org

  • Spina Bifida & Hydrocephalus Association of Ontario
    555 Richmond St W
    PO Box 103
    Ste 1006
    Toronto, Ontario, M5V 3B1
    Canada
    Toll-free: 800-387-1575
    Telephone: 416-214-1056
    E-mail: provinivial@sbhao.on.ca
    Website: http://www.sbhao.on.ca

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support