Other Names for this Disease
- Pierre Robin syndrome with congenital heart malformation and clubfoot
- Talipes equinovarus, atrial septal defect, robin sequence, and persistence of left superior vena cava
Your Questions Answered
2 question(s) from the public on this disease have been answered. Submit a new question.
My 1 year old son and 21 year old brother were recently diagnosed with TARP syndrome. My mother and I have tried to find information on it, but with how rare it is, it is very difficult to find much. So far I have found a little information on one other living boy with TARP. I am just trying to find more information on this syndrome so maybe I will know more about my son and his condition. Click here for answer
Is it possible to be tested to see if you are a carrier of TARP? If so, what medical centers test for it? Click here for answer