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Factsheets and Brochures

How to Find a Disease Specialist

Locate healthcare providers and researchers who have knowledge of your condition.

Tips for the Undiagnosed

Navigate the process of trying to obtain a diagnosis.

NIH Factsheets

The Genetic and Rare Diseases (GARD) Information Center 

The Rare Diseases Clinical Research Network 

Other NIH Fact Sheets


The Genetic and Rare Diseases (GARD) Information Center Brochure

Provides basic information about genetic and rare diseases and a brief description of the services that the GARD Information Center offers. The brochure covers such topics as:

  • A brief overview on genes, genetic diseases and rare diseases.
  • Background information on the ORDR and the National Human Genome Research Institute.
  • Full contact information for the GARD Information Center.

  • Versions
    English ( 1,521KB)
    en español ( 1,534KB)

    GARD Information Center Flyer
     A downloadable flyer for the Genetic and Rare Diseases Information Center in both English and Spanish.
  • English 
  • en español

  • For Copies of the "About GARD" Card and the Gard Information Center Brochure, contact:
    Phone: (888) 205-2311